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Newborn bloodspot screening in Scotland

The dataset provides information on the coverage and results of newborn bloodspot screening in Scotland.

Data and Resources

Additional Info

Field Value
Author PHS CARDRISS Team
Maintainer PHS Open Data team
Last Updated September 22, 2026, 12:18 (BST)
Created September 22, 2026, 08:49 (BST)
Date to make public 2026-09-22
Contact Address Public Health Scotland, Gyle Square, 1 South Gyle Crescent, Edinburgh EH12 9EB
Subject Newborn screening
Frequency Annual
Time frame of data and timeliness The data cover years 2021 to 2025 and are based on babies eligible for newborn bloodspot screening born between January 1, 2021, and December 31, 2025
Coverage Scotland, 1 January 2021 - 31 December 2025
Completeness See Technical Report
Accuracy Data are subject to validation and quality assurance procedures in PHS. In addition, the Scottish Newborn Screening Lab, and pregnancy and newborn screening NHS Board coordinators, and NHS Board lead midwives have the opportunity to review data prior to publication for data quality assurance.
Continuity of data Data are presented from 2021. There are no known impacts on the continuity of data in this release.
Concepts and definitions See glossary and appendix sections of the main report, and the supporting technical report.
Disclosure PHS Statistical Disclosure Control Protocol (https://publichealthscotland.scot/publications/public-health-scotland-statistical-disclosure-protocol/public-health-scotland-statistical-disclosure-protocol-version-22/) has been applied where appropriate.
Revision statement Figures contained within each publication may be subject to change in future publications. See PHS Statistical Revisions Policy
Official statistics designation Official statistics in development
Relevance and key uses of the statistics Providing information on the number of babies eligible for newborn bloodspot screening, the number having newborn bloodspot screening, and screening results. Making information publicly available for monitoring, and service planning and provision.
Format csv
Language English
Links

Link to publication on PHS website: Newborn screening for cystic fibrosis, sickle cell disease, congenital hypothyroidism, and inherited metabolic disorders 1 January 2021 to 31 December 2025